Thursday, March 8, 2012

Letterman, Stern Help Man With Asperger’s Socialize

Letterman, Stern Help Man With Asperger’s Socialize

Text Size  A  A
David Finch has Asperger’s syndrome and struggled to identify with others socially. That is, until he started taking cues from the likes of Howard Stern and David Letterman.
Finch — who recently penned a book about his experience as an adult newly-diagnosed with Asperger’s — said he learned different things from each talk show host he observed.
Stern, for example, can keep a story going for 30 minutes or more on his radio show, continually peeking listeners’ interest by changing his tone. Even when interrupted, the shock jock uses humor to bring the conversation back to his story, Finch says.
Meanwhile, from Letterman, Finch learned to use facial expressions and other body language to get points across.
It took some practice, but Finch says he eventually learned to model the talk show hosts’ techniques for his own benefit.
“I always thought conversations were overrated. But now that I could actually do it, I thought it was really cool,” Finch told The New York Post. To read more click here.

No Two Alike

No Two Alike: Human Nature and Human Individuality
The author of the controversial book The Nurture Assumption tackles the biggest mystery in all of psychology: What makes people differ so much in personality and behavior? It can't just be "nature and nurture," because even identical twins who grow up together—same genes, same parents—have different personalities. And if psychologists can't explain why identical twins are different, they also can't explain why each of us differs from everyone else. Why no two people are alike. Harris turns out to be well suited for the role of detective—it isn't easy to pull the wool over her eyes. She rounds up the usual suspects and shows why none of the currently popular explanations for human differences—birth order effects, for example, or interactions between genes and environment—can be the perpetrator she is looking for. None of these theories can solve the mystery of human individuality. The search for clues carries Harris into some fascinating byways of science. The evidence she examines ranges from classic experiments in social psychology to cutting-edge research in neuroscience. She looks at studies of twins, research on autistic children, observations of chimpanzees, birds, and even ants. Her solution is a startlingly original one: the first completely new theory of personality since Freud's. Based on a principle of evolutionary psychology—the idea that the human mind is a toolbox of special-purpose devices—Harris's theory explains how attributes we all have in common can make us different. This is the story of a scientific quest, but it is also the personal story of a courageous and innovative woman who refused to be satisfied with "what everyone knows is true."  12 b/w

Autism: living with autistic adult children

Autism: living with autistic adult children

In an acclaimed book, Charlotte Moore charted the demands of life with two autistic sons. But how much tougher is it now George and Sam are adults? Elizabeth Grice reports

Image 1 of 4
Charlotte Moore with 20-year-old Sam, one of her two autistic sons Photo: CLARA MOLDEN
The quiet old house begins to tremble from some distant commotion. Thumpings, bangings and a deep, vibrating moan are coming from another room and can mean only one thing. Charlotte Moore begins to clear away all breakable items in the kitchen with practised efficiency, like a stage hand changing a set. She swiftly replaces our ceramic lunch plates and glasses with a single place setting: a melamine plate of biscuits and a plastic beaker of orange juice. “Sam’s back,” she announces.
Her 20-year-old autistic son seems not best pleased to find a stranger invading his territory. He pulls his T-shirt over his nose, rocks in his chair and produces something between a loud humming of disapproval and a warning growl. He is a fine-looking young man with dark, chiselled features but his arms are covered in little wounds and his hands are red and gnawed.
We continue to talk while he decides whether it is safe to emerge from the T-shirt to attack the biscuits. At intervals, he will jump up and stomp around for no particular reason — although his sudden investigation of the scullery, where someone has inadvertently left a bucket of household cleaning stuffs, clearly has a purpose. Charlotte darts over to lock them away, using a bunch of keys she keeps at all times about her person. Sam likes nothing more than to empty unguarded liquids down the sink. He also loves the sound of breaking glass, especially if he is doing the breaking.
There are locks on many doors; piles of magazines in boxes for Sam to rip up. A shredded, unread copy of the current Spectator shows what happens when Sam gets there first.
And yet this is a good phase; a settled phase. Sam is no longer unmanageable. He has a personal assistant who takes him out for long country walks, even into caf├ęs and on trains; he co-operates with a music therapist and a speech therapist.
“Really, the storms of adolescence are over,” says his mother. “He’s more confident. I am quite optimistic that the destructive side of him will lessen and he will become more easily integrated with other people’s lives. But he still needs a huge amount of input and always will.”
A tenacious optimism has characterised her whole experience of bringing up two differently autistic boys, George and Sam, as well as a younger son, Jake, 14, who has no disability. She wastes no time on self-pity because she has no time to waste. If there were a prenatal test for autism, she would think it as irrelevant and futile as a prenatal test for red hair.
“I don’t want to play down the very real problems,” says Charlotte, 53, “but I don’t wish it [autism] away. I never see it as tragic and never will. 'Tragic’ is the friend who has a badly brain-damaged daughter because of a medical error. George and Sam were not deprived of oxygen at birth. They were born autistic, a very different thing.”
When her sons are locked in a world of screaming and self-harming, she would welcome some safe treatment to alleviate their symptoms, but that is not the same as “wishing autism undone”.
“Gentle George, embarked on one of his huge, semi-abstract paintings, absorbed in his blues and pinks and greys: how should he be different?” she asks. And Sam, rollicking away at the keyboard in his bedroom and “singing” in a weird screech… “This is what Sam is.” In a corner of the sitting room, there is the wreckage of an upright piano that he has hammered into submission. “I’ll show you how much he likes this piano,” Charlotte says, opening the lid. Many of the bass keys are dead; others twang wildly out of tune. The upper keys are pristine: he is not interested in higher, lighter sounds.
Though they can be demonic, though the house is scarred by them, she sees her autistic sons as innocents inhabiting an alternative world and their freshness and originality often delight her. They are not acquisitive, malicious or competitive. “Sam might attack people but that’s only if he’s cornered. There is no spite,” she says. Sometimes they are a drain on family life, sometimes an enrichment. “Right now they have a good quality of life and are not significantly less happy than people of their own age.”
George, 22, is the dreamy eccentric, closer to the “holy fool” of ancient times, with no practical sense or ability to function independently, though he has gained in social confidence at his residential college. Sam the survivor, an anarchic, brooding, wild boy of Aveyron, seems knotted with energy.
“If you abandoned them on a desert island,” says their mother, “Sam would survive very well but George would not last five minutes. They are as different from one another as they are themselves different from Jake.”
The sleeves of Sam’s hooded top have been torn away because he prefers bare arms. He spends hours drawing with such force that he imprints the table beneath.
“There is a progression in his pictures,” says his mother. “He is having a long phase of circles with smaller circles inside so they look like bosoms. Sam draws over everything – walls, furniture, television screen. It’s quite funny to have breasts everywhere. I actually think they are meant to be the washing machine and tumble drier, a Sam obsession. Or they might be clocks.
“Some people might really hate having drawing all over their house. I rather like it. I suppose my standards have completely changed. We have inherited graffiti from previous generations of the family who lived here. Why shouldn’t Sam add his rather basic scribbles as well?”
The implacable calm and good humour she brings to bear on crises that convulse the household are the leitmotif of Charlotte Moore’s classic portrait of autism, George and Sam, which she has updated with a new chapter about her sons’ adolescent years (published next week). It cannot be the case that nothing has got her down. But nor has anything prevented her from getting up again. At one point in her book, she describes bundling an out-of-control Sam into the garden until his aggression abates. “He punched through the window, Tom-and-Jerry-style. There was a fist-shaped hole in the glass, but not a scratch on Sam. He reached his hand in, drew the bolt, came roaring back into the kitchen and knocked me down. There was little I could do other than allow myself to be kicked and bitten until the storm had passed.” Though she “didn’t enjoy this sort of incident”, she says she was never afraid.
George and Sam was first published to huge acclaim in 2004 and sold 40,000 copies, even though it had failed to reach the bookshops in the critical days following rave reviews. The novelist Nick Hornby, who has an autistic son, called it the first book about autism that conveyed what it was really like.
But what has happened to these strange boys and their protective younger brother in the seven intervening years? What has happened to Hancox, their much-loved, much-abused Tudor hall house in East Sussex, which by any law of averages should have burnt down years ago? (In a previous phase of throwing everything onto the fire, Sam fed a cushion onto burning logs, then took it out and popped it into a waste-paper basket. Jake raised the alarm.)
And Charlotte. Novelist, children’s writer and author of Hancox, the five-generation story of her family’s house, whose work has always had to take second place to the task of holding everything together. A single mother whose marriage crumbled partly from the strain of raising two autistic boys. A woman whose vigilance can never slacken and who will be needed by her sons for the rest of her life. Is she still sane?
Gloriously so, I would say. Charlotte has entitled her new chapter “What’s Wrong with Being Autistic?” – Jake’s reaction when his mother explained that if autism were observable in an unborn baby, the mother might choose to end the pregnancy. “Why would anyone do that?” he demanded.
“For Jake,” says his mother, “the greatest benefit of having autistic brothers has been his tolerance of human variety. He finds bigotry of any kind baffling.” Jake attends the local state school in Battle. When his friends come home, he never shows embarrassment at his brothers’ behaviour. When they trash his belongings, he never grumbles. It is interesting that two of his best friends are brother substitutes, aged 16 and 19.
George and Sam’s adolescence has not been as terrible as she feared. One piece of good fortune, she admits, is that neither boy, though physically mature, relates sexual sensations to bodily contact with others (see extract, above)
She says their sexual aloofness makes her life easier, “but it does show how profoundly different they are, and always will be, from other people. I can see a day when George might be ready for some kind of relationship but it’s not something I’m hurrying on. Life is much easier without it. I can’t imagine this will ever happen for Sam, but I have learnt over the years not to take anything as absolute. Things do change.”
Just how much is evident from the book, a joyful read despite the enormous question mark hanging over this family’s future. George is in his final year boarding at the Mount Camphill Community, a Rudolf Steiner college near Wadhurst, East Sussex, where he has flourished. What next? Most likely a home-based programme. After a “summer of hell” when Sam left the familiarity of his state-run special school, he has adapted to a varied home-based programme – three days with his inspired personal assistant, Simon Bashford (known as “Bash”), two at a day centre run by Autism Sussex in Battle, and weekends of therapy organised by his mother.
Again, the heart-sinking words: what next? Provision for autistic children is much easier than for autistic adults. What facilities there are have to be fought for, and extra-curricular therapy paid for. So far, the Moores have been lucky to have funded places.
Charlotte has a partner, Simon, who features strongly in the boys’ lives, and frequent help from her extended family. But their daily well-being still depends on her own continuing health and her ability to go on fighting their cause. “The difference between me and my friends is that my care of my sons has no end in sight,” she says.
In an ideal world, she’d have a (soundproofed) house for her sons where they could live separately under one roof, in a wide rural environment close to home. “They would have a rota of carers, but overseen by me. They would have a full timetable of interesting and healthy activities and this would be their lives. I have to confront the fact that it is not practical for them to be at home for ever and ever. My aim in the next few years is to be more dispensable.”
The detail of how this might come to pass does not worry her. It never has. She takes her cue from George, who when asked to make a shopping list, wrote: “I will see when I get there.”
Extract from new postscript to Charlotte Moore's book George & Sam
When people ask about autistic adolescence, what they really want to know about is sex. Well, I can’t speak for everyone, but in our case the whole business has been less dreadful than I had imagined. To date, neither George nor Sam has made a sexual advance to another human being. Both, certainly, are fully physically mature and functioning, but as far as I can tell (which may not be very far) neither has even theoretically connected sexual sensations with bodily contact with others.
At St Mary’s George had a girlfriend, the lovely, high-functioning, non-autistic Emma. She was good for his confidence; he enjoyed dancing with her and being singled out by her, but I believe that was as far as it went. At the Mount, he expressed a faint romantic interest in an autistic girl, but this didn’t amount to more than enjoying being in her general proximity. As for Sam, he’s never proved that he can distinguish between male and female. “What’s Grandfather, Sam?” “A lady.” George might, very occasionally, linger over a picture of a pretty girl in a magazine; Sam would much rather look at a tractor.
It’s been surprisingly easy to teach the boys that there is only one place for their solitary sexual activity – the bedroom. In early adolescence we had a few awkward incidents involving the removal of trousers in public, but only a few. Overall, their sexual behaviour is infinitely easier to mange than their toilet habits – George still leaves it in a mess, Sam still flushes away yogurt pots, candles, rubber ducks, whatever, with expensive and inconvenient consequences. Their sexual aloofness is a measure of the profundity of their “otherness”, but I must say it simplifies matters.
That “otherness”, however well managed, never goes away. I’m so used to it that I forget how odd our home life must look to other people, with locks on many of the doors, piles of magazines in boxes for Sam to rip up, and the television permanently tuned to the CBeebies channel. George complains his foot hurts – I remove his shoe to find, not a sock, but a skiing mitten. Sam strips for his bath – I catch my breath – is that a rare and terrible skin disease? No – he’s drawn all over his legs and torso with felt tips. Making George’s bed, I find his treasures beneath his pillow – a broken CD cover, a label peeled off a jar of Nutella, a postcard from my godmother, the printed out lyrics to Fleetwood Mac’s Man of the World. Have I lost the turkey baster, the nut crackers, the rabbit-shaped jelly mould, any number of Tupperware lids? They’ll be wherever Sam was last seen. A saucepan, left to scorch on the Aga, contains the remains of Sam’s “cooking” – chocolate mousse, curry, and sultanas. The TV remote balanced on top of a door jamb; six spoons lined up to tackle one bowl of cereal; evidence of George’s alternative world view is all over the house.
What do my sons want for their own future? It’s not possible to say. Social workers, health professionals and other concerned parties are, rightly, trained to ask the “service user” about their wishes, to involve them in the consultative process, but with George and Sam, this is a struggle. For the foreseeable future, all decisions about the boys’ needs will have to be made by me.
It’s a big responsibility, and one I only feel qualified to take because I make it my business to understand my sons as well as I can.

New Postage Features Artists with Autism

The work of eight artists with autism from around the world will be emblazoned on a series of postage stamps launching in April in honor of World Autism Awareness Day.
The United Nations Postal Administration will issue eight autism awareness stamps starting April 2. (Courtesy: U.N. Postal Administration)
The United Nations Postal Administration will issue eight autism awareness stamps starting April 2. (Courtesy: U.N. Postal Administration)
The stamps will be issued by the United Nations Postal Administration starting April 2 and will be available at U.N. offices in New York, Geneva and Vienna. The postage is valid for mailing correspondence from any U.N. location globally.
Each year the U.N. Postal Administration issues stamps to call attention to seven different causes that are important to member nations. This is the first time that the U.N. will offer stamps to highlight autism awareness. In addition, the agency plans to release stamps this year focusing on endangered species, the environment and other issues.
Artwork for the stamps was solicited from artists with autism around the globe. The eight winners include five from the United States.
“It was an extremely difficult and challenging process to choose only eight designs from all of the artwork submitted,” said Rorie Katz, creative director for the U.N. Postal Administration. “All of us were personally touched by the stories of the artists and their families who are extremely passionate and supportive about raising awareness for autism.”
Winning designs feature everything from flowers to geometrics. Different stamps will be issued in New York, Geneva and Vienna, with two designs included on each sheet of 20 stamps, according to the U.N. Postal Administration.
Officials say they expect to make about 1 million of the autism stamps available to the public.

How does someone out grow Autism?

In the Feb. 1 New York Times there is a telling op-ed by Benjamin Nugent, a successful writer and a "recovered" Asperger's patient.
A decade ago, at age 20, Mr. Nugent was the featured star in an educational video "Understanding Asperger's," produced by his mother, a psychology professor and expert on the topic. Mr. Nugent had received the diagnosis at age 17, when he exhibited evidence of all the characteristic Asperger's behaviors as these are listed in DSM-IV. He explains just how he managed to meet each criterion: 1) failure to develop peer relationships appropriate to developmental level ("I had few friends"); 2) a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people ("I spent a lot of time by myself in my room reading novels and listening to music"); and 3) an encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus ("I memorized poems and spent a lot of time playing the guitar and writing terrible poems and novels").
The DSM-IV defines Asperger's as a continuous and lifelong disorder. But Mr. Nugent abruptly and spontaneously outgrew his disease right after college and has lived happily ever after. Clearly, as his well-meaning mother now recognizes and regrets, he had been misdiagnosed in the first place. Mr. Nugent writes, "My experience can't be unique. Under the rules in place today, any nerd, any withdrawn, bookish kid, can have Asperger's syndrome. The definition should be narrowed. I don't want a kid with mild autism to go untreated. But I don't want a school psychologist to give a clumsy, lonely teenager a description of his mind that isn't true." Mr. Nugent also wonders how much greater the ill effects of misdiagnosis might have been had he been mislabeled at a younger and more impressionable age. He was obviously not harmed by the stigma attached to being called "autistic," but would Mr. Nugent's ambitions and achievements not have been severely truncated had he, as a 12-year-old, accepted the seemingly authoritative prediction that he was going to be irrevocably impaired for life?
Indeed, as Mr. Nugent has intuited, he is far from alone in "recovering" from autism. A number of studies have documented the surprising instability of the diagnosis as it is currently applied. Some of this is expectable and inevitable; it is inherently difficult to make definitive diagnoses in infants, children, and teenagers, because they are in the midst of such rapid developmental changes. Some of the instability is also doubtless due to the beneficial effects of the recently increased provision of school and treatment services, especially when these are applied early and skillfully. But as Mr. Nugent implies, a good deal of the instability also comes from the loose way the diagnosis of autism is currently applied. The fact that school and mental health services are so coupled to the diagnosis must account for a significant part of the more than 20-fold multiplication in autism rates occurring in just 15 years. Autism used to be among the rarest and most homogeneous of psychiatric disorders; now it has become common, heterogeneous, unreliable, and unstable.
The DSM-5 has somewhat unwittingly and ambivalently suggested radical changes in the definition of autism that would narrow it considerably, thus increasing its specificity and reducing its instability. From a diagnostic standpoint (and to reduce the risks of realizing Mr. Nugent's fear of stigmatizing mislabels), a narrowed diagnosis makes great sense. But there is a completely understandable fear that such narrowing of diagnosis will reduce service and treatment resources for people who really need them.
There is no easy solution to the quandary of how to return to more accurate diagnoses while not jeopardizing needed services. The basic problems are interacting: the DSM-IV diagnosis of autism is too general to be a trustworthy guide to determine who gets which school services, and the linking of services to a diagnosis of autism naturally results in inflated rates. The best way forward would be to decouple the diagnosis of autism from services -- to link services instead to more specific assessments of the individual's educational, behavioral, and interpersonal needs. These are better guides than a vague and overbroad diagnosis of autism that explains less than it promises and carries too much baggage.

Some employers find those with autism especially suited for jobs

Finding steady work in this economy isn’t easy. The challenge is magnified for individuals with disabilities such as autism, who often have difficulty with social interaction.

Experts and parents are trying to change that by helping employers understand what this population has to offer.

“There’s an untapped pool of potential workers available in the special needs community that can really do a great job for many employers,” said Naperville resident Karen Thomas, whose 19-year-old son, Eric, is autistic.

A graduate of Waubonsie Valley High School, Eric works part time as a janitor at Brookdale Music in Naperville and a greeter at Still Middle School in Aurora. Thomas credits the vocational coordinator at Waubonsie for helping her son find those jobs.

Reaching out

Some employers also are reaching out to individuals with autism spectrum disorders. Turning Pointe Autism Foundation recently launched a career development program that involves partnering with Fortune 500 companies, such as Walgreens, to develop career opportunities for people with communication disorders.

Chris Simler, director of career development services at Turning Pointe, said the program includes courses that address career and life skills. Individuals will be able to learn in a mock environment before transitioning into an actual workplace.

The goal is to “create new opportunities for people with disabilities and give them a career in the community,” Simler said.

He stressed there is no typical job for a person with autism. He knows of people working in jobs as varied as retail, data entry, accounting and social work.

“I don’t see the walls,” Simler said. “The more we can put people with autism in different places the more awareness we can create.”

One place is Aspiritech, a nonprofit in Highland Park that hires high-functioning individuals on the autism spectrum to test software. The organization’s name combines the words Asperger’s, spirit and technology.

Moshe Weitzberg, director of operations, said Aspiritech has 14 employees, including his 32-year-old son, who has Asperger’s syndrome. His workers have the ability to focus and spot irregularities that other people would miss. They also deal with challenges related to their autism — some do not like noise or bright lights and many have anxiety issues. Aspiritech has an autism specialist who provides support that extends beyond the workplace.

“This is something that not every company is willing to do,” Weitzberg said.

Productive workers

Professor Scott Standifer of the University of Missouri’s Disability Policy and Studies office said the key to employment is matching a person’s skills and features with job requirements. Employers also need to build in supports and make sure co-workers understand the person’s communication style.

Businesses that hire people with autism “can have not only loyal employees, but loyal customers that come attached to them as family members, advocates and friends,” Standifer added.

Thomas agreed. She recalled attending an event to recognize employers who have hired people with disabilities. Several managers said they had hired disabled students to do a nice thing but found out they made great employees.

“It has become a real win-win for them and the students,” she said. “That’s what we’re trying to educate the small business owners and the hiring managers in the community on — that we’re not asking for charity, we know that our students can be productive workers.”

In both his jobs, Eric started out with a job coach but now works independently, which Thomas called “fantastic.”

Laurie and Jim Jerue of Naperville recognized that their daughter loved to stay busy but would face significant barriers to traditional employment because of her severe autism. They developed a home-based business called Helper Girl through which Sarah, 23, performs tasks, including document shredding and container planting.

“It’s all geared to Sarah’s strengths and her interests as well as my own,” Laurie Jerue said, “so we kind of melded the two into this little business.”

Wednesday, March 7, 2012

Steve Job's Quote

“Here's to the crazy ones ~ the misfits, the rebels, the troublemakers ~ the round pegs in the square holes ~ the ones who see things differently -- they're not fond of rules. You can quote them, disagree with them, glorify or vilify them ~ but the only thing you can't do is ignore them ~ because they change things ~ they push the human race forward ~ and while some may see them as the crazy ones ~ we see genius ~ because the ones who are crazy enough to think that they can change the world ~ are the ones who do” ~ Steve Jobs